When I was diagnosed in 2008 there was virtually no agreement in the medical community about what causes fibromyaliga/CFS or what it even is. Some “authorities” (and their are plenty out there) easily take advantage of people who are in so much pain with claims of a “fix” - with special diets, supplements, herbs, accupuncture…. I tried a zillion things always to be disappointed.
Some say it is a disease of the connective tissues, others say it is an auto immune disease. What they do agree upon is they do not know the cause. They agree that each case is “different”, and that “no two cases are the same”.
A book I happened to skim through about reversing fibromyalgia (I already suspected, after doing a bit of online research, that that’s what I had) stated that some believe that it is emotional trauma, prolonged periods of extreme stress, PTSD - negative emotions - that cause fibromyalgia. I saw the proverbial lightbulb and had a very big “ah ha” moment. I felt this truth rising from the depths of my very soul. This made total sense.
For me the pain began when I was 12 circa 1978 near the time my best friend’s mom - who I was very close to - was killed in a plane crash. Severe pain developed in both knees. That was the end of ME; I could no longer be my true self because the pain took away the things I loved to do most of all. I could not play football with my family. I could not continue to take ballet which I had been taking for nine years with no pain whatsoever, or generally move much without pain. I remember I cried myself to sleep many nights.
As I got older there was more tragedy and more pain. I did not make the connection until 2008, thirty years later, and after thirty years of living with pain. I told my rheumatologist that I was sure that the fibromyalgia was caused by emotional pain I that had endured and held onto for three decades. She ignored this brilliant insight of mine and asked if I wanted lidocaine injections in my shoulders again this month.
Knowing I had one of the best doctors I could hope for, for two years I just thought “so this is how the rest of my life is going to be” and sometimes I cried, and cried. Sadness, fear, stress, anger about the illness, equalled more pain and the despair was growing. It was a viscious and ugly cycle. I could not drive some days. My daughers did not have the mother they deserved, nor did my husband have the wife he deserved. How could I go on for the next 40 years like this, let alone one more?
The great news is that I don’t have to! I am totally better and now the doctors I used to see monthly readily admit to me that they do not have clue about fibromyalgia, each case is totally different, and all they can do is try to manage people’s pain with drugs.
An MD from Chicago demystifies fibromyalgia when he states it is “a condiditon that baffles physicians and haunts over 200 patients worldwide, most of whom are women whose stress-buffering systems are running on empty.” He believes it is caused by prolonged periods of stress, and he wants every doctor and patient in the world to be aware that when they are diagnosed with fibromyalgia they should know that its roots are emotional.
I am 100% better because I found the Rolls Royce of experts in Los Angeles who treated the fibromyalgia by addressing the ROOT CAUSE which were negative emotions, sometimes hard for people to identify. People often do not realize how much anger or fear they have and that it is effecting their health.
The proof that the doctor in Chicago and the expert I discovered in LA through a Palisadian who knew of her and the magnitude of her ability and excellence, is that I AM DONE. I AM BETTER. I want that for everyone.